Starting a New Treatment

Mary taking me for a walk

I have been home now for 11 days making a slow recovery from shingles. My neck and face still have pain but it gets better everyday. I can’t wait for the pain to go away.

They did an MRI scan on Tuesday the 7^th, and we reviewed it with the doctors on Wednesday. The scan showed that the swelling has moved into the other part of my brain and the tumor has grown a little bit.

Chris and I walking through the neighborhood. Like my Sox?

We discussed the options and I am going to start a clinical trial at Strong, which should begin on September 20^th. It is called XL184. You can look it up on the web.

Just to look back over the past month. My father’s funeral at St. Ann’s was very well done. Everybody did a great job especially my brother and niece who gave nice and hilarious talks and captured Dad accurately. It was especially good seeing all of the people at church and at Bellevue CC. 105 people showed up. Thanks for showing up. It meant a lot to my Mom.

It’s nice to be home, I am trying to get out more although I have to use a walker and wheelchair to get around. Thanks to Chris for being my chauffer. He watches over me and makes sure I don’t fall down.

That’s its for now. I will keep you posted on my progress. Need to get back walking.

My View from hospital of:

University of Rochester "Nipple of Knowledge"

If its not one thing, its another thing

Just in case you were wondering where I have been, the day after my fathers service at St. Anns, I was taken to the hospital with a case of the shingles. (The second coming of the chicken pox.)

I was hoping that it would not be serious, but it ended up being a lot more serious than expected. They put me on a mega dose of an antibiotic that reacted with my seizure medicine and caused my Kidneys to start to fail. They immediately took me off the antibiotic and I began to improve. The good news is that my shingles are starting to heal and I am thankful to be home after 9 days in the hospital. I came home on

Monday August 30^th. The bad news is even though the shingles are clearing up. My face and my neck are burning off; it is very painful. Please keep me in your prayers and I pray the burning effect of the shingles goes away soon. Thanks again for your continued support.